Tuesday, March 30, 2010

Hannah finishes the first round of immunotherapy.


After the months of organization to get Hannah here to the Children's Hospital of Philadelphia, she has finally undergone the first round (of 6) of immunotherapy. The antibody treatment lasted for 4 days. There are many side effects associated with this and Hannah was not immune to them. On the first day of infusion Hannah had intense stomach pain though was able to get through the 10 hours of treatment. The second day was more difficult; after 2 hours of the infusion she had much itching and had to be given extra antihistamines. The 3rd day was unfortunately much worse as Hannah had a severe allergic reaction to the antibodies (which are part mouse and part human) and her face swelled up dramatically. The infusion had to be stopped and she was taken to the intensive care unit. The antibodies were given again on the 4th day, at 1/2 tempo, with extra anti-allergy medication given beforehand. Hannah managed to get (almost) all the way through the infusion - she did begin itching after about 17 hours and the infusion was stopped, though she received most of the dose. The next round of immunotherapy will begin in about 2 weeks time.

2 comments:

  1. What a lovely photo - you look gorgeous!
    Not a shingle in sight. Hope the shingles are better. We're so glad that you've started the treatment, but really sorry to hear that it made you so uncomfortable this time. Camilla was highly impressed with the mouse antibodies...
    Thank you for this blog update and the lovely photos. We miss you lots and need you around! The the weather's improved here and it's possible to play outside some days. Can you do that in Philadelphia too? Has the snow all melted there?
    We wish you, your Mummy, Daddy, Sam and all the people you love a wonderful holiday weekend.

    Big kiss,
    Giuliana, Albert, Simona and an especially crushing hug from Camilla. XXXXXX

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  2. Dear Hannah and family,
    Thanks for the update. It sounds very horrible and very hard. And amazing how you got through it. Thinking of you all and wishing you all positive, healthy, cancer fighting thoughts.
    Lots of love,
    Sabrina and family

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