After 3 weeks at home we returned to Germany for the 2nd cycle, this time half dose IL2 but whole dose antibodies. Hannah tolerated this very well , just some pain occasionally and the usual extra 3 kgs of fluid retention. We spent the first week staying at the Elternhaus (parents house) which was unusually quiet, especially over Easter weekend. We did visit a stable owned by Sandra Engelman. It was freezing cold, windy and sleeting but lots of lovely horses!.The second week she stayed in hospital. The main problem for her was boredom. On Saturday the doctor could see we needed to escape so we left early then came back later to change the portable pump she has to wear for the next 5 days. It was removed on Thursday at Sophia.
Unfortunately on the drive home our car started making strange noises. We made it to a garage in Lubeck but it was impossible to repair so after a long wait we rented a car to get home. It was a very long a tiring journey but luckily Hannah was feeling ok.
Now we have to buy a new car!
Randy, Sam and Hannah flew to St. Louis for a visit to Oma, Randy's mother which they both enjoyed a lot. On the way home there was a stopover in Philadelphia, just time to see some friends from our stay there 2 years ago.
Immediately we left for Greifswald again.
As I write Hannah has finished the first week of just IL2 injections , this time full dose. She has had an allergic reaction this time (like many children) but manageable with medication. In fact by Friday it seemed like she was getting used to it. Next week full dose antibodies as well.
Today Hannah had a riding lesson from the wife of the had surgeon from the hospital. She is American (so no language problem) and a wonderful teacher. Gradually we are getting to know this area and make some friends. There are many international families here, more arriving all the time, and all neuroblastoma children.Sometimes the department is so busy you can wait for hours but each child is different so they are constantly assessing and discussing what is the best thing to do.The doctors work very long hours.
Certainly now spring has arrived with blossom and green trees, Greifswald seems much less grey. I am even beginning to appreciate the peace and total lack of things to do, though I have a feeling next week will bring some excitement when Hannah gets the full dose of IL2 and antibodies for the first time.
This is Hannah cantering on Bella without a saddle and stirrups during her lesson.
This part of Germany is flat with large skies and lots of trees. In the distance you can see Hannah walking Bella back to her field with Susan (her riding instructor).
